Cure member diagnosed with Lymphoma

Wishing him all the best in his battle. The Cure have always been one of my favourite bands since my teens ( im 58 now!). https://metro.co.uk/2024/09/01/80s-rockstar-68-reveals-rare-aggressive-blood-cancer-diagnosis-21528956/

12 months ago today we were in Portugal !

Can't get over the fact that 12 months ago today myself and Glen were having a bit of a rest after a 2000 mile drive when we popped over to Silves in the Algarve to visit my old RAF mate Graham Rowland, his Portuguese wife Bela, and his step daughter Vanir. We had a great 30 hours of R and R

I now have Covid 19. Been prescribed PAXLOVID.

Hi Folks. A quick update from my sickbed/desk. Ok, so now 6 days in from my first Covid symtoms and 5 days in from my first positive Lateral Flow Test (LFT). How is it going? Please excuse lack of smart format and presentation.....brain fog IS a thing!! Symptom: All over body ache Sore throat Headache Phlegm in throat Slight wheezing Cough Hoarse voice Lateral flow tested on Monday (4th), Wednesday and today...still positive

URGENT APPEAL. Can you help Divit in his Leukaemia battle ?

Not posted on here for some time but the other day a good friend and fellow NHS worker asked me to post an appeal for a family member. can you help? Divit needs some serious funding to help him win his battle against a particularly rare form of Leukaemia. thank you 😊 Divit's Go Fund ME page

Feb 27th 2021...almost another month

So tomorrow is the end of the week and also the end of the month of February.

Cannot remember exactly how many months I have been Shielding in the last 12 , but I think its around 8 ......8 months out of 12 I have been told to remain at home whilst this bloody pandemic refuses to do one and let us get s back to some form of normality.....yes ,its been a very strange almost 12 months and no sign of an end just yet.

Second week of sheilding begins....

Whilst i am forced to hide away for my second week (of 12),  i am trying to convince myself i am avoiding becoming a burden to my NHS colleagues who are valiantly fighting this virus on a daily basis.....THEY are the real heros right now, and i think the picture above says it all.

Stay home, stay safe and protect the NHS..

Covid-19 and Leukaemia. My return to Blogger April 2020.

So today it was confirmed that due to my CLL i am to remain at home for 12 weeks and not go to the hospital i have worked in for almost 24 years 🤨😐

The reason is pretty simple. Having had CLL for almost 14 years , and even though i still remain on "watch and wait" i am deemed now to have enhanced vulnerability to the Coronavirus. 

The main issue is that my platelets are pretty low right now, around 124'000. The normal range is between 150'000 and 450'000, and this is a problem because several recent studies have identified a heightened risk for those with low platelet counts.

The condition is called thrombocytopenia. 

A few links to recent studies follows:

https://www.univadis.co.uk/viewarticle/covid-19-thrombocytopenia-tied-to-higher-risk-of-severe-disease-and-mortality-715766

https://www.stgeorges.nhs.uk/service/diagnostic-services/haematology/haematology-itp-immune-thrombocytopenia/

https://onlinelibrary.wiley.com/doi/abs/10.1111/jth.14848

These are strange and worrying times for many...and i have decided, that since i am now being confined to barracks, i may as well get my blogging head back on and perhaps pass on some news, views and the occasional bit of humour and trivia.

Stay safe, stay well, stay in ( unless you need to go out of course !) 😉😊

Miracle Mineral Solution (MMS)....DO NOT USE ..IT IS BLEACH !!

Been made aware of this awful stuff recently.

https://www.justice.gov/opa/pr/seller-miracle-mineral-solution-sentenced-prison-marketing-toxic-chemical-miracle-cure

JAILED for over 4 years in prison for selling it....

https://www.bbc.co.uk/news/uk-england-london-33079776

Shady character exposed by BBC for selling this potentially lethal "quack" concoction !


https://metro.co.uk/2018/01/28/desperate-parents-trying-cure-autism-giving-children-bleach-7266567/

Seen enough yet ?

https://youtu.be/RApj_vuW8iE



DO NOT FALL FOR THGIS SCAM...it is a cruel and sickening exploitation of sick and vulnerable people.

Claims to cure all manner of afflictions... yet NO INDEPENDANT proof.....only testimony's of unqualified and easily lead customers.

  

Listening to Radio 4 " The life scientific " talking to Greg Winter

https://www.revolvy.com/page/Greg-Winter

Interesting claims about ALC causes.

I saw this on the BBC and thought you should see it: Missing microbes 'cause' childhood cancer - http://www.bbc.co.uk/news/health-44199844

Scirocco 2 Morocco 10 years on. Scarlett Mk3...The new chapter begins :-)

Obviously anyone who has been following my blog over the last 10 years must be aware of the disaster which befell my Mk2 Scirocco Scala "Scarlett".

After my brilliant car was fatally damaged by a 42 ton lorry on the A17 in 2014 I was left, after a messy and financially crippling court case, with not only no car, but with a £2000 legal bill and permanent Tinnitus. The other driver had a much better legal team than me and on the day the judge decided to award fault to both parties....although the 3 versions of the other drivers statement should have made him question what ACTUALLY happened on that cold February morning !!

Anyway. I digress.

This post is to let you know that I AM BACK !

Gone is the Ford Focus ST which i owned for around 2 and a half years primarily due to my long term good friend David who, Observing my predicament and being a very kind fella, offered to sell me the ST for a bargain price......a very welcome and generous gesture being as i had spent the last 2 years feeling incredibly stressed and ultimately humiliated and financially ruined by a system that appears to hold such things as the truth as being incidental to the facts !.....i'm off   again aren't I lol :-)

So. Ladies and Gentlemen. Can i now then present to you Scarlett Mk3 (She's a Mk3 Scirocco so hence the label!)

This cracking motor is an October 2008 Scirocco 2.0ltr TSI GT which is finished in Salsa Red, which is not such a dissimilar colour to my previous Mk2 (Paprika Red)....which is a nod to the old girl of course :-)

Of course this year (September) marks 10 years since I and my excellent friend Glen Place set off on our Scirocco 2 Morocco adventure.....and on our return to the UK we were invited to attend the launch of the New Scirocco Mk3 at Heron VW in Newark upon Trent. If i remember correctly Glen was unable to make it up to my neck of the woods but myself and my son attended with Scarlett and her half Roc trailer.....so the fact i now own a Scirocco from that particular moment in time seems somehow fitting as a continuation of my love of these cars.


So....here she is.

Scarlett Mk3......

Of course the Registration is quite poignant as this is actually my 6th Scirocco (S6) (6 and a half if you count the trailer!) and its a Volks Wagen Scirocco (VWS)... nice :-)

So far the car has been fantastic, and i hope to be showing her at the Scirocco Register National Meeting in August 2018.....alongside Glens newly refurbished 1988 Scala.....should be EPIC :-)

Another tragic death due AML. Terrible news.

https://www.mirror.co.uk/news/uk-news/heartbroken-sky-sports-presenter-simon-11899013

plaw3211@gmail.com

Messages people about items for sale.... calls themselves Parker (but probably has numerous identities ). I chose to ignore them....😂😂😂

Does DKMS duplicate Anthony Nolan work ?

Looking into a company with the acronym DKMS (Deutsche Knochenmarkspenderdatei (German Marrow Donor Program) I find it slightly worrying that this company,established in 1991,appears to be pretty much duplicating the marrow donors register that was set up in the 1970's by Shirley Nolan. That is not to say that their work is not good or indeed important....but why duplicate a system already in place (worldwide by the 1990's) instead of working in conjunction with a well established marrow register ?The only major difference appears to be the extended upper recruitment age (55) which has always been an issue with ANT which has a much lower upper age cut off .
I have contacted them via Facebook and hope to get some more information which I will post at a later date 😊

Take care folks 😊

New treatment for ALL

The therapy, which will be marketed as Kymriah, works against acute lymphoblastic leukaemia.

I saw this on the BBC and thought you should see it:

Historic 'living drug' gets go-ahead - http://www.bbc.co.uk/news/health-41094990