Sunday, 9 January 2022

URGENT APPEAL. Can you help Divit in his Leukaemia battle ?

Not posted on here for some time but the other day a good friend and fellow NHS worker asked me to post an appeal for a family member. can you help? Divit needs some serious funding to help him win his battle against a particularly rare form of Leukaemia. thank you ๐Ÿ˜Š Divit's Go Fund ME page

Saturday, 27 February 2021

Feb 27th 2021...almost another month

So tomorrow is the end of the week and also the end of the month of February.

Cannot remember exactly how many months I have been Shielding in the last 12 , but I think its around 8 ......8 months out of 12 I have been told to remain at home whilst this bloody pandemic refuses to do one and let us get s back to some form of normality.....yes ,its been a very strange almost 12 months and no sign of an end just yet.

Monday, 27 April 2020

Second week of sheilding begins....

Whilst i am forced to hide away for my second week (of 12),  i am trying to convince myself i am avoiding becoming a burden to my NHS colleagues who are valiantly fighting this virus on a daily basis.....THEY are the real heros right now, and i think the picture above says it all.

Stay home, stay safe and protect the NHS..

Tuesday, 21 April 2020

Covid-19 and Leukaemia. My return to Blogger April 2020.

So today it was confirmed that due to my CLL i am to remain at home for 12 weeks and not go to the hospital i have worked in for almost 24 years ๐Ÿคจ๐Ÿ˜

The reason is pretty simple. Having had CLL for almost 14 years , and even though i still remain on "watch and wait" i am deemed now to have enhanced vulnerability to the Coronavirus. 

The main issue is that my platelets are pretty low right now, around 124'000. The normal range is between 150'000 and 450'000, and this is a problem because several recent studies have identified a heightened risk for those with low platelet counts.

The condition is called thrombocytopenia. 

A few links to recent studies follows:

These are strange and worrying times for many...and i have decided, that since i am now being confined to barracks, i may as well get my blogging head back on and perhaps pass on some news, views and the occasional bit of humour and trivia.

Stay safe, stay well, stay in ( unless you need to go out of course !) ๐Ÿ˜‰๐Ÿ˜Š

Monday, 25 February 2019

Miracle Mineral Solution (MMS)....DO NOT USE ..IT IS BLEACH !!

Been made aware of this awful stuff recently.

JAILED for over 4 years in prison for selling it....

Shady character exposed by BBC for selling this potentially lethal "quack" concoction !

Seen enough yet ?

DO NOT FALL FOR THGIS is a cruel and sickening exploitation of sick and vulnerable people.

Claims to cure all manner of afflictions... yet NO INDEPENDANT proof.....only testimony's of unqualified and easily lead customers.


Tuesday, 22 May 2018

Interesting claims about ALC causes.

I saw this on the BBC and thought you should see it: Missing microbes 'cause' childhood cancer -

Sunday, 11 February 2018

Scirocco 2 Morocco 10 years on. Scarlett Mk3...The new chapter begins :-)

Obviously anyone who has been following my blog over the last 10 years must be aware of the disaster which befell my Mk2 Scirocco Scala "Scarlett".

After my brilliant car was fatally damaged by a 42 ton lorry on the A17 in 2014 I was left, after a messy and financially crippling court case, with not only no car, but with a £2000 legal bill and permanent Tinnitus. The other driver had a much better legal team than me and on the day the judge decided to award fault to both parties....although the 3 versions of the other drivers statement should have made him question what ACTUALLY happened on that cold February morning !!

Anyway. I digress.

This post is to let you know that I AM BACK !

Gone is the Ford Focus ST which i owned for around 2 and a half years primarily due to my long term good friend David who, Observing my predicament and being a very kind fella, offered to sell me the ST for a bargain price......a very welcome and generous gesture being as i had spent the last 2 years feeling incredibly stressed and ultimately humiliated and financially ruined by a system that appears to hold such things as the truth as being incidental to the facts !.....i'm off   again aren't I lol :-)

So. Ladies and Gentlemen. Can i now then present to you Scarlett Mk3 (She's a Mk3 Scirocco so hence the label!)

This cracking motor is an October 2008 Scirocco 2.0ltr TSI GT which is finished in Salsa Red, which is not such a dissimilar colour to my previous Mk2 (Paprika Red)....which is a nod to the old girl of course :-)

Of course this year (September) marks 10 years since I and my excellent friend Glen Place set off on our Scirocco 2 Morocco adventure.....and on our return to the UK we were invited to attend the launch of the New Scirocco Mk3 at Heron VW in Newark upon Trent. If i remember correctly Glen was unable to make it up to my neck of the woods but myself and my son attended with Scarlett and her half Roc the fact i now own a Scirocco from that particular moment in time seems somehow fitting as a continuation of my love of these cars. she is.

Scarlett Mk3......

Of course the Registration is quite poignant as this is actually my 6th Scirocco (S6) (6 and a half if you count the trailer!) and its a Volks Wagen Scirocco (VWS)... nice :-)

So far the car has been fantastic, and i hope to be showing her at the Scirocco Register National Meeting in August 2018.....alongside Glens newly refurbished 1988 Scala.....should be EPIC :-)

Tuesday, 23 January 2018

Another tragic death due AML. Terrible news.

Sunday, 10 December 2017

Messages people about items for sale.... calls themselves Parker (but probably has numerous identities ). I chose to ignore them....😂😂😂

Thursday, 2 November 2017

Does DKMS duplicate Anthony Nolan work ?

Looking into a company with the acronym DKMS (Deutsche Knochenmarkspenderdatei (German Marrow Donor Program) I find it slightly worrying that this company,established in 1991,appears to be pretty much duplicating the marrow donors register that was set up in the 1970's by Shirley Nolan. That is not to say that their work is not good or indeed important....but why duplicate a system already in place (worldwide by the 1990's) instead of working in conjunction with a well established marrow register ?The only major difference appears to be the extended upper recruitment age (55) which has always been an issue with ANT which has a much lower upper age cut off .
I have contacted them via Facebook and hope to get some more information which I will post at a later date 😊

Take care folks 😊

Wednesday, 30 August 2017

New treatment for ALL

The therapy, which will be marketed as Kymriah, works against acute lymphoblastic leukaemia.

I saw this on the BBC and thought you should see it:

Historic 'living drug' gets go-ahead -

Tuesday, 29 August 2017

Pitons and Props 2017.East Kirkby Airfield.

Well . what an amazing day!!

Exotic cars AND Historic Aircraft...bliss !! :-).

Pictures and a full write up to follow .

Saturday, 10 June 2017

Adam West AKA Batman dies aged 88

I was really sad to hear that one of my childhood hero's Mr Adam West famous for playing the Batman character in the hit 1960's TV series has recently passed away.

His family released a statement stating that this lovely fella had been suffering from Leukaemia and thanking all for their love and support for Adam over the many years of his career .

RIP Adam West ...THE Batman 😊😊

Saturday, 22 April 2017

So. How is MY Leukaemia doing these days ?

Well I am glad to report that so far it is behaving itself ! :-). August 15th  this year marks 11 years since my CLL diagnosis at Grantham Hospital during what i had believed to be a "routine" appointment!!

In the last 11 years I have gone from blood tests and prods every 3 moths to blood tests and check-ups every 12 months. As an added bonus I am now under the excellent care of Mr Tim Moorby,of the resident Haematology Consultants at the hospital I have worked at now for almost 21 getting to my appointments is a relatively straight forward affair :-).

In the old days a decade or so ago I had to make my way to Grantham to see a random consultant {never quite sure who I would be seen by!) and the blood results would take between 7 to 10 days before they arrived at my GP surgery.....awaiting the results was a very stressful situation believe me !

So. I will be 51 in May, diagnosed in 2006 aged 11 years on...hopefully this little resume will give a bit of encouragement to anyone who is newly diagnosed.....i wish i could have read something like this early on in my journey because fear (and insomnia) had to be the worst aspects in the early years.

As my good friend (Sadly now departed ) Geoff Brocklebank told me in the dark weeks after my shock discovery..." You are more likely to die with CLL than from it".....that simple sentence was like an epiphany to me...and gave me the strength and drive to get my head in order...and to get involved in things such as this Blog. Thanks are sadly missed my friend, but you gave me the inspiration to get off my sorry ass and do something useful with my (new, post CLL) life  :-)

Until next time.