Well I am glad to report that so far it is behaving itself ! :-). August 15th this year marks 11 years since my CLL diagnosis at Grantham Hospital during what i had believed to be a "routine" appointment!!
In the last 11 years I have gone from blood tests and prods every 3 moths to blood tests and check-ups every 12 months. As an added bonus I am now under the excellent care of Mr Tim Moorby,of the resident Haematology Consultants at the hospital I have worked at now for almost 21 years....so getting to my appointments is a relatively straight forward affair :-).
In the old days a decade or so ago I had to make my way to Grantham to see a random consultant {never quite sure who I would be seen by!) and the blood results would take between 7 to 10 days before they arrived at my GP surgery.....awaiting the results was a very stressful situation believe me !
So. I will be 51 in May, diagnosed in 2006 aged 40....now 11 years on...hopefully this little resume will give a bit of encouragement to anyone who is newly diagnosed.....i wish i could have read something like this early on in my journey because fear (and insomnia) had to be the worst aspects in the early years.
As my good friend (Sadly now departed ) Geoff Brocklebank told me in the dark weeks after my shock discovery..." You are more likely to die with CLL than from it".....that simple sentence was like an epiphany to me...and gave me the strength and drive to get my head in order...and to get involved in things such as this Blog. Thanks Geoff....you are sadly missed my friend, but you gave me the inspiration to get off my sorry ass and do something useful with my (new, post CLL) life :-)
Until next time.
Andy
