Thursday, 2 November 2017

Does DKMS duplicate Anthony Nolan work ?

Looking into a company with the acronym DKMS (Deutsche Knochenmarkspenderdatei (German Marrow Donor Program) I find it slightly worrying that this company,established in 1991,appears to be pretty much duplicating the marrow donors register that was set up in the 1970's by Shirley Nolan. That is not to say that their work is not good or indeed important....but why duplicate a system already in place (worldwide by the 1990's) instead of working in conjunction with a well established marrow register ?The only major difference appears to be the extended upper recruitment age (55) which has always been an issue with ANT which has a much lower upper age cut off .
I have contacted them via Facebook and hope to get some more information which I will post at a later date 😊

Take care folks 😊

Wednesday, 30 August 2017

New treatment for ALL

The therapy, which will be marketed as Kymriah, works against acute lymphoblastic leukaemia.

I saw this on the BBC and thought you should see it:

Historic 'living drug' gets go-ahead - http://www.bbc.co.uk/news/health-41094990

Tuesday, 29 August 2017

Pitons and Props 2017.East Kirkby Airfield.

Well . what an amazing day!!

Exotic cars AND Historic Aircraft...bliss !! :-).

Pictures and a full write up to follow .

Saturday, 10 June 2017

Adam West AKA Batman dies aged 88

I was really sad to hear that one of my childhood hero's Mr Adam West famous for playing the Batman character in the hit 1960's TV series has recently passed away.

His family released a statement stating that this lovely fella had been suffering from Leukaemia and thanking all for their love and support for Adam over the many years of his career .

RIP Adam West ...THE Batman 😊😊

Saturday, 22 April 2017

So. How is MY Leukaemia doing these days ?






Well I am glad to report that so far it is behaving itself ! :-). August 15th  this year marks 11 years since my CLL diagnosis at Grantham Hospital during what i had believed to be a "routine" appointment!!

In the last 11 years I have gone from blood tests and prods every 3 moths to blood tests and check-ups every 12 months. As an added bonus I am now under the excellent care of Mr Tim Moorby,of the resident Haematology Consultants at the hospital I have worked at now for almost 21 years....so getting to my appointments is a relatively straight forward affair :-).

In the old days a decade or so ago I had to make my way to Grantham to see a random consultant {never quite sure who I would be seen by!) and the blood results would take between 7 to 10 days before they arrived at my GP surgery.....awaiting the results was a very stressful situation believe me !

So. I will be 51 in May, diagnosed in 2006 aged 40....now 11 years on...hopefully this little resume will give a bit of encouragement to anyone who is newly diagnosed.....i wish i could have read something like this early on in my journey because fear (and insomnia) had to be the worst aspects in the early years.

As my good friend (Sadly now departed ) Geoff Brocklebank told me in the dark weeks after my shock discovery..." You are more likely to die with CLL than from it".....that simple sentence was like an epiphany to me...and gave me the strength and drive to get my head in order...and to get involved in things such as this Blog. Thanks Geoff....you are sadly missed my friend, but you gave me the inspiration to get off my sorry ass and do something useful with my (new, post CLL) life  :-)

Until next time.

Andy

Can't Pay we'll take it away Delroy Anglin needs your help to find a donor







Hi folks. Ok, this is my first post in quite some time but I felt compelled to post a message appealing for folk to rally together to help a very nice guy that many of us have seen on the TV series "Can't pay we'll take it away".

Delroy always came across as the sort of chap that , given hobsons choice!, most of us would prefer to be knocking on our door in relation to "financial issues"!. He does a job as a court debt collection agent that often  attracts a lot of abuse ...which he always deals with amicably :-).

In November last year Delroy sadly discovered he had developed Leukaemia and indeed is currently in the care of the Royal Marsden hospital.

Delroy NEEDS A BONE MARROW donor IMMEDIATELY!
Can you or anyone you might know from the African Caribbean community help find him one URGENTLY?

If you can could you please contact the Africa Caribbean Leukaemia Trust via their website
Thanks people . Let's hope his search is successful :-)

Best of Luck Delroy. We are all with you my friend :-)



Thursday, 7 July 2016

1/18 scale Scarlett and half Rocco trailer model (98261358022322056074)

In May this year I celebrated my 50th birthday.

After a crushing result in court in February relating to the loss of my amazing Scirocco "Scarlett" in an accident in 2014 I was feeling pretty low having lost the vehicle, the compensation and now suffering from chronic Tinnitus, things were not so rosy for celebrating my 5 decades of life.......but the amazing hard work, skill and dedication of one amazing chap named Glen Place provided me with an epic ,mind-blowing gift that can only really be appreciated by seeing it in the flesh ( or cast perhaps?).

No words now, just pictures to document the amazing thing that Glen has done for me in completing this incredible project

Scarlett and trailer in 1/18 scale....

Tuesday, 5 July 2016

No win, No Fee.....A cautionary tale..

As many of my regular readers will already know,In April 2014 my amazing 1987 Mk2 Scirocco "Scarlett"was rear ended by a 44 ton HGV whilst I was making a right hand turn into a layby.
Most people I spoke too about this accident told me that it was obviously the lorry drivers fault and that any future court case would follow that line of reasoning....but the law, as I have found out to my cost, is not so clear cut, or a fair as the layman would like believe.

I had, up until my court date in 2016, had no experience of what to expect, and so, in the interest of assisting and informing anyone else considering following the same course, have decided to share my own experience and make them aware of many aspects of choosing a "No win, No fee" route that they are probably not aware of.

Over the next few posts I will tell the story of my experience of such an occurrence...and the astonishing and expensive result of my seeking justice .

A tale of misplaced faith, miss understood choices and miss guided trust in a legal process which , when it goes terribly wrong, does not give the client a voice, allows people to lie and get away with it.....and lands the "victim" with huge costs which they may, like i was, be unaware they could face.


Due to legal minefields I will change the names of the parties involved, but will tell you a tale which may make you wonder if the safety net we call the process of taking a claim to court is actually as just and fair a decision as we may all like to believe it is......

Friday, 10 June 2016

Can anybody help with this appeal?

http://www.getsurrey.co.uk/news/surrey-news/thames-ditton-leukaemia-sufferer-needs-11432257

Interesting results from this study...

Study says a major blood cancer is 11 distinct diseases - http://www.bbc.co.uk/news/health-36479291

BBC coming around today for a chat :-)

Today I have a chap coming around to the house to do an interview with me for a well known consumer program.

Not going to tell you what it's about right now, but will post some more details up here once he has been to let you know how it goes :-)

Not had any reporters around since Rob Sissons came along to cover the Scirocco2Morocco drive in 2008 for East Midlands today and I had to drive the Scirocco along a back lane a few times with him filming in the rear to get footage for the story (it's on YouTube under the title "Scirocco 2 Morocco BBC visit" or something like that :-)

Sunday, 10 April 2016

BloodWise. The new name of Leukaemia and Lymphoma Research....and much easier to type ,share my story :-)





Just had a look at the new(ish) Bloodwise website and spotted a familiar contributor who has had his Leukaemia story published on there :-)

If you fancy a read just follow the link below......

https://bloodwise.org.uk/blog/my-battle-chronic-lymphocytic-leukaemia

Keep on fighting Folks :-)