Sunday, 10 December 2017

Messages people about items for sale.... calls themselves Parker (but probably has numerous identities ). I chose to ignore them....😂😂😂

Thursday, 2 November 2017

Does DKMS duplicate Anthony Nolan work ?

Looking into a company with the acronym DKMS (Deutsche Knochenmarkspenderdatei (German Marrow Donor Program) I find it slightly worrying that this company,established in 1991,appears to be pretty much duplicating the marrow donors register that was set up in the 1970's by Shirley Nolan. That is not to say that their work is not good or indeed important....but why duplicate a system already in place (worldwide by the 1990's) instead of working in conjunction with a well established marrow register ?The only major difference appears to be the extended upper recruitment age (55) which has always been an issue with ANT which has a much lower upper age cut off .
I have contacted them via Facebook and hope to get some more information which I will post at a later date 😊

Take care folks 😊

Wednesday, 30 August 2017

New treatment for ALL

The therapy, which will be marketed as Kymriah, works against acute lymphoblastic leukaemia.

I saw this on the BBC and thought you should see it:

Historic 'living drug' gets go-ahead -

Tuesday, 29 August 2017

Pitons and Props 2017.East Kirkby Airfield.

Well . what an amazing day!!

Exotic cars AND Historic Aircraft...bliss !! :-).

Pictures and a full write up to follow .

Saturday, 10 June 2017

Adam West AKA Batman dies aged 88

I was really sad to hear that one of my childhood hero's Mr Adam West famous for playing the Batman character in the hit 1960's TV series has recently passed away.

His family released a statement stating that this lovely fella had been suffering from Leukaemia and thanking all for their love and support for Adam over the many years of his career .

RIP Adam West ...THE Batman 😊😊

Saturday, 22 April 2017

So. How is MY Leukaemia doing these days ?

Well I am glad to report that so far it is behaving itself ! :-). August 15th  this year marks 11 years since my CLL diagnosis at Grantham Hospital during what i had believed to be a "routine" appointment!!

In the last 11 years I have gone from blood tests and prods every 3 moths to blood tests and check-ups every 12 months. As an added bonus I am now under the excellent care of Mr Tim Moorby,of the resident Haematology Consultants at the hospital I have worked at now for almost 21 getting to my appointments is a relatively straight forward affair :-).

In the old days a decade or so ago I had to make my way to Grantham to see a random consultant {never quite sure who I would be seen by!) and the blood results would take between 7 to 10 days before they arrived at my GP surgery.....awaiting the results was a very stressful situation believe me !

So. I will be 51 in May, diagnosed in 2006 aged 11 years on...hopefully this little resume will give a bit of encouragement to anyone who is newly diagnosed.....i wish i could have read something like this early on in my journey because fear (and insomnia) had to be the worst aspects in the early years.

As my good friend (Sadly now departed ) Geoff Brocklebank told me in the dark weeks after my shock discovery..." You are more likely to die with CLL than from it".....that simple sentence was like an epiphany to me...and gave me the strength and drive to get my head in order...and to get involved in things such as this Blog. Thanks are sadly missed my friend, but you gave me the inspiration to get off my sorry ass and do something useful with my (new, post CLL) life  :-)

Until next time.


Can't Pay we'll take it away Delroy Anglin needs your help to find a donor

Hi folks. Ok, this is my first post in quite some time but I felt compelled to post a message appealing for folk to rally together to help a very nice guy that many of us have seen on the TV series "Can't pay we'll take it away".

Delroy always came across as the sort of chap that , given hobsons choice!, most of us would prefer to be knocking on our door in relation to "financial issues"!. He does a job as a court debt collection agent that often  attracts a lot of abuse ...which he always deals with amicably :-).

In November last year Delroy sadly discovered he had developed Leukaemia and indeed is currently in the care of the Royal Marsden hospital.

Can you or anyone you might know from the African Caribbean community help find him one URGENTLY?

If you can could you please contact the Africa Caribbean Leukaemia Trust via their website
Thanks people . Let's hope his search is successful :-)

Best of Luck Delroy. We are all with you my friend :-)