Scirocco (Almost!) 2 Morocco 2008 4 Leukaemia & Lymphoma: leukaemia and lymphoma society

Sunday, 18 October 2009

Is this the longest surviving CLL patient ?

Found this posted on the Leukaemia and Lymphoma Society website today......................

"In a few months my 90 year old father will mark his 35th year since he was diagnosed. Has been in & out of remission numerous times, transfused more times than I can remember. Three rounds of chemo (IV) since 1997, last one in 2007. Currently receiving Rituxan once every 3 months. Now off Prednisone after years..
Downside is that he may be a diabetic now! Diagnosed with Alzheimer's 3 years ago, also had
several skin cancer surgeries in the last 3 years. Just like the Energizer Bunny, he keeps going!!"

Wow!.This sounds like a very encouraging bit of news for people like myself to hear :-)

Visit the Leukaemia and Lymphoma site by clicking HERE

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Scirocco 2 Morocco 2008.An overview of the challenge.

Hi there, my names Andy Ward,I am a Life Support Systems Medical Engineer at an NHS Hospital.....and I just happen to have Chronic Leukaemia!.

Welcome to my Blog Page which was produced to publicise a trip from the UK to North Africa that my good friend (and fellow NHS collegue) Glen and I undertook in September 2008 driving my trusty 21 year old VW Scirocco named "Scarlett" :-)

*Car and Trailer Information

1987 Scirocco Scala 1.8 Ltr Carburettor donated to me by a chap named Steve from Leicester in June 2007.

The Trailer is made from the rear end of a 1989 Scirocco GT2 which was donated by a guy from Derby in 2008.The conversion work was done by ASMech Engineering in Mansfield.

The car and Trailer were resprayed (free of charge) by AW Accident Repair Centre in Sleaford.AW also repaired the car in April-June 2008 after it received frontal damage in an accident.

The graphics for the cars first 2 missions (Roc Around the Clock in 2007 and in 2008 Scirocco 2 Morocco) were done by Lee of Custom Vinyl Graphics in Anwick. The most recent set of vinyl's have been fitted by "Biff" of PawPrint Graphics in Newark.

Wheels for the Scirocco 50LLR Project have been sorted by John Leeson of WheelCraft in Heckington with some support from Kumho Tyres and Team Dynamics Alloys.

The donation of a set of 4 new tyres plus invaluable assistance keeping the Scirocco on the road for the last 3 years has been down to the amazing support of PITSTOP GARAGE in Sleaford.Thanks to all of you :-)

The Design for the Scirocco 50 LLR Project was devised by Benn Perry of West Nottinghamshire College.

Projects so far:

Roc Around the Clock, August 2007 (£1550 Raised)

Scirocco 2 Morocco,September 2008 (£5500 Raised)

Anthony Nolan Donor Event, June 2009-79 New Donors

Anthony Nolan Donor Event, June 2010- 48 New Donors

Scirocco 50 LLR. Shows so far: Croome Park, Stanford Hall,Tredegar House,GTI International.....

2010 Appearences in Publications: Chad,Observer local newspapers.VW Driver Magazine,Top Gear Magazine.

Since our return from the trip, during which we managed to almost get to Morocco (Ended up finishing in Gibraltar due to ferry costs!), I am now using this blog to promote the task of recruiting people to the bone marrow and cord blood registers and also to report news about Leukaemia and Lymphoma issue's, with the occasional "off topic" section just to keep you interested!.It's great to be able to raise money for Leukaemia and Lymphoma Research and the Anthony Nolan Trust, but at the end of the day money is not enough.We need to dispel the myths and misconceptions about donating bone marrow and cord blood so that more people will sign up to give "The gift of life".

Thanks.Andy :-)

(NB.The views held within this blog are my own, and do not in any way reflect the opinions or legislation of my employers or other agencies mentioned within it's text)

If you feel that you can offer help,support or sponsorship to our cause,then please feel free to contact me at this email address:

mailto:scirocco2morocco@tiscali.co.uk(removethistext(removethistext)

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Scirocco (Almost!) 2 Morocco 2008 4 Leukaemia & Lymphoma

Sunday, 18 October 2009

Is this the longest surviving CLL patient ?

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