Friday, 30 January 2015

Jak Trueman. A real cancer hero. Respect to you for your amazing courage :-)




Last week Scottish teenager Jak Trueman received the devastating news that his rare form of T-cell lymphoma was terminal.

 Jak is determined to help patients in the time he has left and last night made a moving appearance on STV News: http://bit.ly/1DckeYZ

Jak has raised more than £20,000 to help beat blood cancer in less than a week since hearing the news and his selfless courage and bravery is an inspiration to us all. Show your support for Jak by sharing this post, leaving a message of support in the comment box below and making a donation to his JustGiving page: http://bit.ly/1Dckkjk

http://news.stv.tv/east-central/308253-jak-trueman-fulfilling-life-wishes-after-told-cancer-is-terminal/?utm_source=FacebookPost&utm_medium=social&utm_term=Jak%2BTrueman&utm_campaign=General%2BNews

What an AMAZING young fella :-)
.

Arctic Blast 2015...Another Scirocco adventure soon to be underway :-)







I heard some great news today that another pair of brave souls are planning on setting off on an epic adventure a la Scirocco on the 1st March this year :-)

Here are a few details from their facebook "About" page:


  • In March brothers Tony and Paul Greer will undertake a daunting driving challenge. Having bought a car for under £1000 they will attempt to drive in a 5000 mile round trip to Nordkapp, the most northerly point in Europe it's possible to reach by car. Nordkapp is 2500 miles away from London on the northern tip of Norway, 700 miles inside the Arctic Circle. The brothers want to raise money and awareness of two charities that have personal importance to them. These are Leukaemia and Lymphoma Research and the Antony Nolan charities who special in blood diseases and manage the national bone marrow register.

    You can follow their preparations including a frantic hunt to find a suitable car (This was recently confirmed to be a Mk2 Scirocco!) and get everything organised before departing on Sunday 1st March.




  • Making Tracks - Arctic Blast has been supported by sponsors helping the brothers achieve their goal. You can help to by donating on our Justgiving Team page.

Their facebook page can be found here: https://www.facebook.com/ArcticBlast2015/info?tab=page_info






Saturday, 24 January 2015

Tragic and pointless Leukaemia death of a child

What a sad story :-(

http://www.newrepublic.com/article/120823/canada-lets-makayla-sault-die-leukemia-over-religious-sensitivity

Tragic, and possibly preventable :-/

Tuesday, 13 January 2015

Charlie Hebdo. An open letter by Olivier Tonneau.

  Three days ago, a horrid assault was perpetrated against the French weekly Charlie Hebdo, who had published caricatures of Mohamed, by men who screamed that they had “avenged the prophet”. A wave of compassion followed but apparently died shortly afterward and all sorts of criticism started pouring down the web against Charlie Hebdo, who was described as islamophobic, racist and even sexist. Countless other comments stated that Muslims were being ostracized and finger-pointed. In the background lurked a view of France founded upon the “myth” of laïcité, defined as the strict restriction of religion to the private sphere, but rampantly islamophobic - with passing reference to the law banning the integral veil. One friend even mentioned a division of the French left on a presumed “Muslim question”.

            As a Frenchman and a radical left militant at home and here in UK, I was puzzled and even shocked by these comments and would like, therefore, to give you a clear exposition of what my left-wing French position is on these matters.

            Firstly, a few words on Charlie Hebdo, which was often “analyzed” in the British press on the sole basis, apparently, of a few selected cartoons. It might be worth knowing that the main target of Charlie Hebdo was the Front National and the Le Pen family. Next came crooks of all sorts, including bosses and politicians (incidentally, one of the victims of the shooting was an economist who ran a weekly column on the disasters caused by austerity policies in Greece).  Finally, Charlie Hebdo was an opponent of all forms of organized religions, in the old-school anarchist sense: Ni Dieu, ni maître! They ridiculed the pope, orthodox Jews and Muslims in equal measure and with the same biting tone. They took ferocious stances against the bombings of Gaza. Even if their sense of humour was apparently inacceptable to English minds, please take my word for it: it fell well within the French tradition of satire – and after all was only intended for a French audience. It is only by reading or seeing it out of context that some cartoons appear as racist or islamophobic. Charlie Hebdo also continuously denounced the pledge of minorities and campaigned relentlessly for all illegal immigrants to be given permanent right of stay. I hope this helps you understand that if you belong to the radical left, you have lost precious friends and allies.

            This being clear, the attack becomes all the more tragic and absurd: two young French Muslims of Arab descent have not assaulted the numerous extreme-right wing newspapers that exist in France (Minute, Valeurs Actuelles) who ceaselessly amalgamate Arabs, Muslims and fundamentalists, but the very newspaper that did the most to fight racism. And to me, the one question that this specific event raises is: how could these youth ever come to this level of confusion and madness? What feeds into fundamentalist fury? How can we fight it?

            I think it would be scandalous to answer that Charlie Hebdo was in any way the cause of its own demise. It is true that some Muslims took offence at some of Charlie’s cartoons. Imams wrote in criticism of them. But the same Imams were on TV after the tragedy, expressing their horror and reminding everyone that words should be fought with words, and urging Muslims to attend Sunday’s rally in homage to Charlie Hebdo. As a militant in a party that is routinely vilified in the press, I don’t go shoot down the journalists whose words or pictures trigger my anger. It is a necessary consequence of freedom of expression that people might be offended by what you express: so what? Nobody dies of an offence.

            Of course, freedom of speech has its limits. I was astonished to read from one of you that UK, as opposed to France, had laws forbidding incitement to racial hatred. Was it Charlie’s cartoons that convinced him that France had no such laws? Be reassured: it does. Only we do not conflate religion and race. We are the country of Voltaire and Diderot: religion is fair game. Atheists can point out its ridicules, and believers have to learn to take a joke and a pun. They are welcome to drown us in return with sermons about the superficiality of our materialistic, hedonistic lifestyles. I like it that way. Of course, the day when everybody confuses “Arab” with “Muslim” and “Muslim” with “fundamentalist”, then any criticism of the latter will backfire on the former. That is why we must keep the distinctions clear.  

            And to keep these distinctions clear, we must begin by facing the fact that fundamentalism is growing dangerously and killing viciously. Among its victims, the large majority are Muslims who would surely not want to be confused with their killers. So I return now to the question: what is the cause of the rise of fundamentalism?

            A friend told me that it was “the West bombing Muslim countries”. I am deeply suspicious of a statement that includes two sweeping generalizations and is reminiscent of Samuel Huntington’s theory of the “clash of civilizations”: the western world vs. the Muslim world. The only difference between George W. Bush and a leftwing stance would be that whilst Bush sided with the western world, the leftwing activist sides with the Muslim world. But to reverse Huntington’s view is a perverse way of confirming it. So let us try to address the issue otherwise.

            It is obvious that the rise of fundamentalism is intertwined with the complex series of tragedies that unfolded from colonialism to the present times, including the Israel/Palestine conflict. Yet I think we should recognize one thing. Just as the Christian religion caused an enormous lot of problems in the West for centuries, problems which were not always peacefully resolved, Islam has caused enormous problems in the Muslim world to a lot of people, too. Anywhere in the world, the space for individual rights has always had to be opened by rolling back religion a few miles. And this is something that the Muslim world has begun doing as early as the nineteenth-century, with difficulties not dissimilar to those experienced in the Christian world – for those who would like to explore the parallel, I recommend reading Sami Zubaida’s excellent book Beyond Islam.

            Few people even know today that there was a period, beginning in the mid-ninetieth century to the mid-twentieth century, called the Nadha (Rebirth, or Renaissance), which saw a wide-ranging process of secularisation from Morocco to Turkey. Few people care to remember that, in the 1950s and 60s, women wearing the veil were a small minority in Tunis, Algiers and even Cairo. This does not mean that they were not Muslims, mind you. Just as in the West, where a lot of Christian girls started having sex before marriage or taking the pill, principles were evolving, with some inevitable tensions.

            Much as it offends the Edward Saïd vision of cultures as bound to devour or be devoured, the Nadha was fuelled by ideas developed by European thinkers and enthusiastically endorsed by local students and intelligentsia – and before you accuse me of Western paternalism, let me stress two things. First, “ideas developed by European thinkers” are not “western ideas”. The anti-colonial movement referred to Marx, Freud and Robespierre, who had – and still have – fierce critics in the West. Second, at the very same time as the anti-colonial movement was drawing inspiration from the history of struggles in Europe, Claude Levy-Strauss was transforming the Western understanding of civilization by studying other cultures, just as Leibniz had extensively studied Chinese language, law and politics in his quest for Enlightenment. Peoples are neither homogeneous nor self-enclosed units: within peoples, people organize themselves and oppose themselves around principles and ideas.

            It is on the ashes of the Nadha that fundamentalism as we know it emerged. I say “emerged”, because we should not be fooled by the fundamentalists who claim to restore Islam in its original purity. The ideology they promote – literal, violent, legalistic, narrow-minded, other-worldly – is a radical novelty in the history of Islam. It is the dramatic perversion of a culture. So how did such a perversion take place? This is where the story gets complex – more complex than that of the West vs. the Muslim world.

            Anti-colonial movements in France’s former colonial empire (in Tunisia, Algeria, Morocco but also in Egypt) were secular (which of course does not mean that their members were atheists): they intended to create modern nation-states independent from the tutelage of Western exploiters. Thus in Algeria, the Front de Libération Nationale was fighting for the creation of a Democratic And Popular State of Algeria (note the distinctly communist touch). Yet the chaos that emerged during and after independence wars (for which the West clearly has a serious responsibility) provided an excellent opportunity for fanatics of all sorts, who had deeply resented the evolution of their countries, to return to prominence with a vengeance. Thus in Algeria, an extremist wing that had already subverted the FLN during the war eventually came into power after decades of political and economic instability, only to unleash atrocious violence. I have friends of Algerian origins who deeply resent to this day the fundamentalists who robbed them of their secular state and persecuted them to the point that they eventually migrated to France. I am not an expert on “the Muslim world” – if such generalization even makes sense – but I think a similar sort of process took place in many other countries.

            So France is home today to many Arabs, some of them Muslims, who were chased away from their home country by fundamentalists as early as the 1960s. They were exposed to racism of course, especially in the workplace – it’s the story that goes back to the Middle Ages of workers who fear the threat of outsiders – and also bullied by the police and treated like second-class citizens. They fought for equality and justice, with the support of many on the left of the political spectrum, for instance during the 1983Marche des beurs. Believe it or not, none of the protagonists of the march were making religious claims; they were not walking as Muslims but as French citizens who demanded that France truly provides them with Liberté, Egalité and Fraternité.

            The spirit of the Marche des beurs is that of Charlie Hebdo: justice for all citizens, including migrants and minorities. Now let me fast forward. Last year, a film was produced, commemorating La Marche des beurs. The producers asked famous rappers to collectively record a promotional number. One of the rappers threw in the verse: “I demand a Fatwa on the dogs at Charlie Hebdo”. He also contrasted “our virtuous veiled girls” with “the make-up wearing sluts”. Yet there were many women in the Marche; none of them were taking a religious stance and few of them were wearing the veil. How could a secular movement for equality be rewritten in religious terms? This raises the question of the rise of fundamentalism in France.

            Let us be clear: fundamentalism is not caused by immigration from Muslim countries. It is very easy to demonstrate this: Muslims migrated in France as early as the 1950s and the issue of fundamentalism only arose in the last fifteen years. Moreover, among the young men who enlist to fight for Daesh, many are actually disenfranchised white youth with no familial links to Islam. Fundamentalism is something new, that exercises a fascination on disenfranchised French youth in general – not on Muslims in general. In fact, the older generation of French Muslims is terrified by the phenomenon. After the killing of Charlie Hebdo, Imams demanded that the government take action against websites and networks propagating fanaticism. 

            That the emergence of fundamentalism is posing serious problems to Arabs also sheds an interesting light on the law banning the hijab – a law that is routinely mentioned as a proof of France’s anti-Muslim bias. I do not have a definite opinion on this law. I was, however, stunned when I read a very angry article by a writer I admire, Mohamed Kacimi. The son of an Algerian Imam, deeply attached to his Muslim culture yet also fiercely attached to secularism, Mohamed Kacimi lashed out angrily at white, middle-class opponents of the law, who focused on the freedom of Muslim women to dress as they please. They were not the ones, he said, who had their daughters in the suburbs called prostitutes, bullied and sometimes raped for the sole reason that they chose not to wear the veil – let us remember that many Muslim women do not consider wearing the veil as compulsory: again, we have here Muslims being persecuted by fundamentalists.

            France has a long tradition of secular Islam, fully compatible with the laws of the Republic, but at war with fundamentalists. In the nineties, the Paris Imam was shot by fanatics whose violence he denounced; more recently, the Imam of Drancy, who expressed displeasure with Charlie Hebdo’s cartoons but firmly denounced the fatwa issued against them by Al Qaida, was himself condemned to death by the terrorist organization and is living under the protection of the police.

            So the question is: how has a fraction of the French youth (of either white, black or Arabic origin) become so responsive to fundamentalism? The answer to this question cannot be directly traced back to “the West bombing Muslim countries”. I think it has primarily to do with the complete failure of the Republic to deliver on its promises of Liberté, Egalité, Fraternité. Here, there is an important point to make.

            I often read in the English press, or hear from British friends, that French laïcité is a “foundational myth” – as if France lived under the illusion that religion could be eradicated once and for all. This has nothing to do with laïcité properly defined. Laïcité does not deny anybody the right to express their religious beliefs, but it aims to found society on a political contract that transcends religious beliefs which, as a result, become mere private affairs. The beurs who marched on Paris in 1983 were performing a laïc demonstration. They were not the only ones to demand that the Republic be true to its own principles. In a beautiful book titled La Démocratie de l’Abstention, two sociologists trace the heartbreaking story (at least it breaks my republican heart*) of how the French citizens who arrived from the former colonies vote massively: they are proud of their right to participate in democracy. They try to convince their children to do the same; but the latter are not interested. Decades of social segregation and economic discrimination has made it clear to them that the word ‘French’ on their passport is meaningless – there is no equality, no freedom and clearly no fraternity.

            The process of disenfranchisement was gradual. Riots in the banlieues started erupting at the turn of the eighties, and gathered pace in the nineties. They had no religious subtext: they were expressions of anger at discrimination and police harassment. Yet the need to belong is a fundamental human need: if French youth of Arab descent could not feel that they belonged to France, what would they belong to? La Démocratie de l’abstention describes how the conflict between Israel and Palestine – which had been going on for decades already - suddenly caught the imagination of the youth: it was their Vietnam, their cause. They had found their brothers overseas. When, in the 2009 European elections, a bunch of crazed conspiracy theorists launched an anti-Semitic party which had strictly nothing to do with Europe or with the issues that these youth faced, they registered high votes in many suburbs. And as the Israeli-Palestinian conflict itself degenerated from a political conflict into a religious conflict, so did the French youth begin to read the world in religious terms.

            Youth is the age of self-sacrifice and revolutionary dreams. In the sixties, young middle class Frenchmen who felt alienated from their conservative milieu idolized Mao’s cultural revolution – no less nihilist than Islamic fundamentalism –, dreamed of throwing bombs and sometimes did so. But this case is different. The middle-class Maoists belonged to a privileged class. They were highly educated. They had the intellectual, economic and social means to move out of their nihilist craze and back into the world. The disenfranchised, ostracized youth are an easy target for indoctrinators of all sorts. Their world-view becoming ever more schematic, they endorsed a West Vs Muslim grid that apparently made some of them incapable of recognizing that a newspaper such as Charlie Hebdo, who was standing with Palestine, for ethnic minorities, for equal rights and justice, was on their side – a precious ally: the sole fact that Charlie Hebdo had poked fun at their faith was enough to make them worthy of death.

            And yet perhaps this narrative (which, be reassured, is nearing its end) helps you understand what Charlie Hebdo was trying to do. It was precisely trying to defend the republican ideals whereby it is not religion that determines your commitments but justice. It mocked not the religion that Muslims have quietly inherited from their fathers and forefathers, but the aggressive fundamentalism that demands that everybody defines themselves – ethically, politically, geographically – in religious terms. It stressed that a religion that lays a claim to ruling a society is dangerous and, yes, ridiculous, whichever religion it may be – Islam is no sacred cow.

            To conclude. I firmly condemn the bombing of Middle-Eastern countries (or any country for that matter) by Western governments. I vote for political parties that condemn it, and I demonstrate against it. I was shocked when such demonstrations were outlawed by the French government – but happy when the same government recognized the Palestinian state. In these demonstrations, I walk with people of all colours, origins and religious creed – we take a political, not a religious stand. And I despair to think that a fraction of the population of my country refuses to regard me as their ally because I am no friend of religions. Being aware of the root causes of the madness that took hold of these young people, I detest politicians who have done nothing to resolve the deliquescence of the banlieues, to fight routine discrimination and control police persecutions. These issues play as big a part in my view in the rise of fundamentalism in the French youth as do events in the Middle East; that is why, had I been in France today, I do not know if I would have wanted to march together with Angela Merkel and David Cameron – much less with Netanyahu and outright Nazis such as Viktor Orban.

            This is the difficult argument I am having with my French friends: we are all aware of the fact that the attack on Charlie Hebdo will be exploited by the Far right, and that our government will use it as an opportunity to create a false unanimity within a deeply divided society. We have already heard the prime minister Manuel Valls announce that France was “at war with Terror” – and it horrifies me to recognize the words used by George W. Bush. We are all trying to find the narrow path – defending the Republic against the twin threats of fundamentalism and fascism (and fundamentalism is a form of fascism). But I still believe that the best way to do this is to fight for our Republican ideals. Equality is meaningless in times of austerity. Liberty is but hypocrisy when elements of the French population are being routinely discriminated. But fraternity is lost when religion trumps politics as the structuring principle of a society. Charlie Hebdo promoted equality, liberty and fraternity – they were part of the solution, not the problem.

 

            With all best wishes,

 

            Olivier

 

Saturday, 29 November 2014

Talking about video games......




Dan raises money for Leukaemia And Lymphoma Research by undertaking 24 hour games marathon.





http://www.giantbomb.com/profile/dankempster/blog/beating-bosses-to-beat-blood-cancer/97579
/

Great idea for raising money for charity :-)

Well done to Dan Kempster. If you fancy doing a Le Mans 24 hour style challenge using my virtual Scirocco please get in touch :-)

Scarlett the VW Scirocco now on Forza for Xbox One :-)


"Scarlett" the 1987 VW Scirocco was utilised many times to promote the work of Leukaemia and Lymphoma Research and was expected to be doing so for many more years.
Sadly, as mentioned in previous posts, in April this year my poor car was written off by a rather large HGV which rear ended it causing significant and sadly, unrepairable damage.
Luckily, my brilliant friend Glen Place, has resurrected the old girl into a virtual life in the Forza Motorsport game on the Xbox One console 
And here she is 




Monday, 24 November 2014

Pit ponies blog. transcription of memoirs of George Jelly.

Please take a few minutes to view a blog that has recently been created by my daughter Lauren

She has transcribed from a small book, written many years ago by George Jelly, some fascinating insights into the lives of pit ponies and their drivers.

Very interesting read indeed :-)


http://30yearspitponies.blogspot.co.uk/?m=0

Wednesday, 12 March 2014

Been scammed on ebay by Willbay9000 William Peckore

,

Hi Folks. Long time no post.Sorry, been quite busy recently but decided that a recent event which took place demanded for me to post a warning to other potential victims of an ebay scammer named (apparently but not verified!) William Peckore.

It all started when my son requested that i buy him some points to use on xbox live. As it happened i was browsing ebay so decided to see what was on offer.

I found a seller called Willbay9000 who was offering 4200 points for £29.99 and would email the code immediately as payment was made.

My son offered to sell his PSP to fund the purchase so i placed the order via Paypal and waited...and waited..and waited!

2 hours later i decided to request the user information via ebay and was given the name William Peckore and a mobile number of 07565393439 to call. I called several times but each time it was an answephone. I then noticed that 2 negative feedbacks had appeared since my purchase suggesting that the seller was a scammer....mmmm...not good!

I then went to my paypal account and made a note of the sellers details that they had on the invoice.

His email was willia@virginmedia.com and there was another mobile number labeled as being for customer support.....it was a fake unrecognized number! Oh dear!

During the next hour i left a message on the answer phone, emailed via ebay and waited.....nothing.....except that in this time the seller went on-line and changed his user name to hspab3 !! WTF ?

The negative feedbacks began to pile up and by Saturday night they had reached 9! Each victim had lost between £10.50 and £29.99....nice little earner indeed...but it got worse..much worse.

I called Paypal who advised me that because the advert breached ebay rules to do with delivering codes via email, paypal would not directly refund me the money...i would have to go to my bank to seek a refund....oh joy!. But the worst part was that even though i gave paypal (and their parent company ebay) the heads up on the scammer they still allowed his to keep the advert on the site...until it disappeared at the end of Saturday night....and the result? 29 PEOPLE GOT SCAMMED BY THIS MORON!!

Anyway. I did a little research about MR Peckore (or is that your real name?) and this is what i found out.

In 2012 William Peckore registered a domain name BULKROIDS.COM with Go Daddy .
 How do i know it was the same guy? Well he provided this info:


Registered through: godaddy.com, llc (http://www.godaddy.com)
   Domain Name: BULKROIDS.COM
      Created on: 22-Aug-12
      Expires on: 22-Aug-13
      Last Updated on: 23-Aug-12

   Registrant:
   William Peckore
   112 london road
   hailsham, west sussex bn27 3al
   United Kingdom

   Administrative Contact:
      Peckore, William  Email of willia
      112 london road
      hailsham, west sussex bn27 3al
      United Kingdom
      07565393439

   Technical Contact:
      Peckore, William  Email of willia
      112 london road
      hailsham, west sussex bn27 3al
      United Kingdom
      07565393439

Notice the mobile number and the email? 

I checked with Zoopla and the property was sold last in 2002 and not again since then, so i believe Mr Peckore still lives there.

I have used Google street view and now seen 112 London Road (across the road from Leap Cross enterprise park and down the road from the Plumb Centre)

I have a friend who lives a few miles away who is going to verify some details...i will keep you informed :-)

If you have found this post because you have been scammed by this moron, please feel free to comment and we can see if we can "equalize" our situation :-)

Watch out for updates! 

UPDATE!! JUST CHECKED AND NOW SHOWING AS "NOT A REGISTERED USER" 12/03/2014

Thursday, 28 November 2013

Greeting to my Spanish Scirocco owner friends :-)

Yesterday I received my Club Scirocco window graphics and today I fitted them to the car .

I think they look Awesome !! :-)


Deryn Blackwell. An inspirational boy with courage to shame the greatest super hero!!



The bravery and spirit shown by a Norfolk teenager in his battle against a rare duo of cancers has moved many over the last few months.
Deryn Blackwell, 13, from Watton, has been in hospital in Bristol since February after undergoing and recovering from a bone-marrow transplant which doctors hoped would treat his leukaemia and Langerhans cell sarcoma. 

However, after weeks of waiting, the Wayland Academy pupil was told the donor’s marrow had failed to graft and his last chance would be to have his own bone-marrow stem cells put back in.
Over the last few weeks the family have been waiting patiently to find out whether that had worked.

Today, Deryn’s mother Callie Blackwell has posted a Facebook update on Deryn’s progress, which she has given us permission to reproduce.

“I don’t know where, how or even if I should start this post...
I need to write it down for me, I express my feelings through my words and as I write this, I am considering whether or not I will share it. Perhaps it should just be for me but then we have been supported by so many people over the years so I feel that I owe it to you all to keep you informed.
“Yesterday we were called into the quiet room yet again, away from Deryn yet again and yet again there were four Dr’s.
“The Dr’s have been talking about Deryn, as they do three to four times a day and they have all come to the agreement that Deryn’s last bag of cells is very unlikely to graft given the fact that it’s been 30+ days with absolutely no count.
“They talked a lot about supporting him now, giving him what he needs to help him the best way they can so that he is comfortable and in as little pain as possible.
“I can write this very matter of fact and you may be thinking that I am cold and heartless but I feel detached when I write, this is not my boy I am writing about - I feel that this is a story I am writing and I am now writing the last chapter.
“The granulocytes are going ahead, not now because they feel it may kickstart anything but now because they would like Deryn to be infection free as much as possible so that he can pass peacefully and not in pain and full of infection.
“I think the main reason for their chat was to let us know that we now need to start thinking about what happens IF Deryn is overcome by an infection in the very near future.
“Do we want him to go to PICU where he will be kept alive, the infection possibly made better by a series of tubes and drips when if he were to come out of PICU, he would still be no better off than he is now. Effectively it would be just prolonged the inevitable.
Or
Do we want to let him go?
“That isn’t something we can really know just yet, I have that need to do everything we can for him, even if we know that it will be pointless.
“I can’t just let him go like that when there is even the tiniest of chances that he might be the first person in over 35 years to graft after 30+ days.
“They expect to see anything, IF there were to be anything from the Grans after 10-14 days so they are willing to let this go on for another two weeks and they will review again.
“If nothing new has happened then that’s it - we move onto palliative care.
“We could keep Deryn alive for some time yet with blood transfusions, platelets and granulocytes from various donors but this is just another form of life support, it’s an artificial process. The only way we can keep Deryn alive long term is if he can produce his own blood cells and at the moment, he can’t.
“This has gone on long enough, he has fought for long enough and endured far more than anyone should ever have to. It would not be fair to keep Deryn alive through artificial means, to what ends would it be?
“It doesn’t feel real - it feels like there was someone else there in that room listening to those words.
“But I know it’s real because I look at my boy, my little baby boy who will be 14 on Sunday and will be forever 14 and I cry. I cry because it hurts, it physically hurts and I can’t make it stop - no one can.
“I cry because of the lost potential, I cry because he could have been something wonderful, he IS something wonderful and this just is not fair.
“We walked back into Deryns room and he said “Please don’t cry mum, just tell me what they said”
“So, I told him - he just smiled and said okay.
“He’s at peace, he’s accepted this, I believe that he’s truly not scared or worried because he has had a long time to think things over and if anyone can teach me that everything is as it should be, it’s my brave boy.
“We are going to visit the hospice on Thursday, Deryn initially didn’t want to go but today he said that he would like to go. He feels that it would be for the best to go there if he doesn’t graft. I asked him if he were sure, we can wait until he’s seen the place before we need to make any decisions. He looked at me and said that he would rather go there because he doesn’t want Dylan (Deryn’s younger brother) to find him.
“Although that wouldn’t happen, he doesn’t know that and yet, even now - he is thinking of his brothers feelings and thinking of how we all will be.
“I keep crying and he keeps saying to me to not be upset and to just carry on as normal. I’m not to worry because it won’t change anything.
“Dylan has had a very hard time of it today, he was crying in the bathroom and when I opened the door, he stood with tears streaming down his face with his fists clenched - he snarled and then punched the mirror.
“He is so torn inside, we’ve put him through all of this too but we will all get through this as a family - we’ve got this far.
“Deryn has taken us all on such a wonderful journey but I will never regret the years I had with him, but I’m selfish and I want more!
“I know there is a tiny chance that he may pull some sort of Deryn miracle out of the bag but in all honesty, I’m a realist too, I don’t think that is going to happen now - I want more than anything for him to prove me wrong.
“I would give my own life if it meant that he could have one but I feel that this is the beginning of the end of this path for Deryn - he has taken us all on such a journey but we are nearing our destination.
“I envy Deryn in many ways, I envy his peace and I envy him because he will be forever innocent - he’s never going to be tainted, hurt or have to realise just how cruel this world can be. He has suffered so much but he has never complained, he has always seen it as his duty and something that he chose to experience.
“I am in awe of Deryn and I never want him to leave me but unfortunately, we don’t always get what we want xxxx

“Thank you all so much - please don’t leave us yet though, this journey isn’t over yet xxxxxxxxx”
If you can help the family or want to follow their daily progress, visit www.doeverything.org.uk or follow them on Twitter at www.twitter.com/_DoEveRYthiNg

Reproduced from the EDP24 website.

Sunday, 29 September 2013

Seat Alhambra Central Locking Problem Solution

Having had this problem with our 2001 Alhambra recently, and having had to trawl through numerous forum posts to get an answer....here it is:

Try Changing Fuse No 32! It may be fully or partially blown....this causes strange behaviour in the central locking system :-)


Thursday, 8 August 2013

Scirocco Register National Meet.RAF Cosford 10th August 2013. See you there :-)

Hi Folks.

Well, after an eventful few weeks in which Scarlett has had to be fitted with a new radiator,battery and clutch cable (which was due to breakage and an eventful 21 mile drive home minus clutch facility!), we are now on the verge of attending the umpeenth Scirocco register meet at RAF Cosford (yaaaaaay!!)

Did not attend last year due to numerous obstacles and events, the worst of which was the passing of my lovely mum Jill after her valiant and inspirational 7 year fight against Ataxia (Dementia).Love ya mum :-)

This year, against a backdrop of numerous other setbacks and obstacles it looks like we may just make it to the gathering :-)

Tomorrow sees the car being valeted by Matt who has done me a very good deal for both car and trailer (saves my back and head...which i am always banging whilst hoovering the interior!).

Hopefully, (notice how positive my attitude is!) i will begin the drive down to the White pump farm campsite sometime after 2pm to meet up with many old, and some new friends.

I will post a report ...sorry, that sounds far to grand!...a roundup of the proceedings and post a few pictures to boot.

By the way. HAPPY BIRTHDAY RACHEL! to my eldest daughter who will turn 19 whilst i am away at the meet on Saturday.

Watch this space :-)

UPDATE:

Had a short but enjoyable National show and met many of my old Scirocco mad mates again...and a few new ones to boot :-)

Took the opportunity to do a little fund raising for Leukaemia and Lymphoma Research on the day (it would be rude not to...especially when your car has their name on it!) and managed to collect a very respectable total of £132.75...brilliant !!

Thanks to all my fellow owners who made contributions, and a special thanks to my best friend from Holland Sander who bought the framed limited edition print of my Scirocco, signed by Sir Ian Botham, for a very generous £50! Top bloke :-)


Andy

Sunday, 30 June 2013

My famous fellow Leukaemia warrior Murray Walker is doing a talk for charity...

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Murray Walker, the legendary voice of motor sport is performing (is that the right description?) a talk in August 2013 to raise money for another Leukaemia Charity called Leukaemia Busters (UK).

If you would like to go and see Murray (my all time favourite motor racing commentator by the way!). Follow the link below.

http://www.leukaemiabusters.org.uk/pages/murrayWalker.aspx

Tickets are selling fast!

I would love to go but sadly I will be with my family in Norfolk enjoying a well earned rest in the lovely resort of Hemsby !.

If you happen to read this Murray, hope you are well and well done for supporting a very worthy cause :-).