Ha ha...If you have found my site I guess that like me you tried to type in the website address featured on BBC Eastenders......and found that it didn't exist ! :-)
Anyway, look on the bright side, at least you have found a usefull website that has a touch of humour , a few moans, and a few stories about people living,coping and being treated for Leukaemia.
Anyway, thanks for dropping by !
:-)
Rude Masood.....nice ring to it !
Monday, 5 October 2009
Sunday, 4 October 2009
A passage from "A Kiss Through Glass" by Shirley Nolan.
"I rememebr my joy when once I had a son.I had so many dreams of our future together.I wanted so much for him;to guide him,with love,through his illness to healthy manhood.Those dreams were shattered when Anthony died on the evening of Sunday 21 October 1979 aged just seven years.Those were seven years of happiness and heartache during which we battled together for his health and freedom;seven years during which our special love-bond grew with the realisation of my privilege to be the mother of such a brave and beautiful son.A gentle, sensitive boy, Anthony enjoyed music ,poetry and painting.He loved to pick flowers and delighted in their variety and perfume,shape and colour.His favourite flower was the simple daisy. Did he realise , i wonder,how swiftly the daisy blooms and dies? To me it is sad analogy of his own short life."
Shirley Nolan 28th October 1979
Shirley Nolan 28th October 1979
Leukaemia Foundation of Australia. Doing great work half a world away!
"A vision to cure, a mission to care". This is the slogan used by the Leukaemia Foundation of Australia, and I have been taking a look at their website today.Its ggod to see that half a world away there are people engaged in the fight against blood cancers, and that they have a few idea's about fundraising that perhaps we in the UK can learn from...and even pinch!.
Rather than go on about the work that this fantastic foundation undertakes, here is a link to the website. Click HERE to take a look.
I REALLY love the Light the Night events....how cool are they ?
.
Leukaemia Foundation's Light the Night
On Thursday, 8 October people just like yourself right across Queensland Australia, will light balloons to Remember, Celebrate and Give Hope to patients and families living with leukaemias, lymphomas, myeloma and related blood disorders.
You can help create a sea of lights across the sky by lighting your own balloon. Each coloured balloon contains a tiny light and has special meaning.
They will light a gold balloon to Remember a loved one lost.
Light a white balloon to Celebrate being a blood cancer surviver.
Light a blue balloon to Give Hope and show your support.
Before you Light the Night, enjoy a family fun atmosphere with entertainment and inspirational stories. Following the lighting ceremony you can take party in a leisurely scenic walk to light the night.On the evening there will also be the opportunity for participants to write a reflective personalised message on a blue, white or gold paper balloon. These balloons will then be displayed on a symbolic wall for other participants to see and read. Messages can be about hope, love, courage, compassion and support for patients, families and friend who have been touched in some way by leukaemia's, lymphomas, myeloma or related blood disorders.Leukaemia Foundation's Light the Night08 October 2009Stockland Park, Bokarina.
Wouldn't it be great if we could do this in the UK also ?
Oh no...I can feel another project coming on !
Who says that every cloud doesn't have a silver lining ?
.....Because the other week I finally received my NHS prescription exemption certificate (or perhaps swipe card would be more accurate!) which means that from now on I won't have to pay for any prescriptions that I have given to me by my GP.
Of course the only downside to this is that the scheme was actually introduced in September last year, and it has taken 12 months for me to finally receive my confirmation of eligibility, so I have been paying for medication for a year that in I should not really have had to.
Oh well, at least I will save a few quid as/when things start to get interesting in the future.
I strongly advise anyone living with cancer, not matter what stage you are at, to fill in the form, get your GP to counter sign it and then claim what is rightly yours to do so.
Who says that clouds don't have silver linings ? :-)
Of course the only downside to this is that the scheme was actually introduced in September last year, and it has taken 12 months for me to finally receive my confirmation of eligibility, so I have been paying for medication for a year that in I should not really have had to.
Oh well, at least I will save a few quid as/when things start to get interesting in the future.
I strongly advise anyone living with cancer, not matter what stage you are at, to fill in the form, get your GP to counter sign it and then claim what is rightly yours to do so.
Who says that clouds don't have silver linings ? :-)
Broken 'switch' link to leukaemia
A broken genetic "switch" has been discovered that can trigger leukaemia.
Scientists believe the discovery - lifting the lid on a previously unknown messaging mechanism in cells - could lead to new treatments.
Leukaemia is a cancer of the bone marrow and the immune system's white blood cells, which do not develop properly and begin to divide uncontrollably.
Like the HIV Aids virus, the disease leaves the body less able to fight off infections. It also disrupts the manufacture of red blood cells, leading to anaemia.
Leukaemia affects more than 7,000 people in the UK each year and causes 4,350 deaths.
Scientists are still unclear about what causes the cancer. The disease has been linked to smoking, exposure to radiation, and infection by a virus that attacks white blood cells. People with Down's syndrome also have a higher risk of developing leukaemia.
The new research implicates a gene called JAK2 that acts as a master switch, turning different genes on or off.
Previously JAK2 was only thought to function on the inner surface of cells. But investigators at the Wellcome Trust/Cancer Research UK Gurdon Institute at Cambridge University found that it also acts at the heart of the cell, in the nucleus.
There, an enzyme made by JAK2, controls the activity of other genes by altering proteins called histones that pack and protect DNA.
When JAK2 develops a fault its messages can become garbled, leading to chaos in the workings of the cell and triggering cancer.
Story sourced via the Press Assosciation Website.Click HERE to view.
Scientists believe the discovery - lifting the lid on a previously unknown messaging mechanism in cells - could lead to new treatments.
Leukaemia is a cancer of the bone marrow and the immune system's white blood cells, which do not develop properly and begin to divide uncontrollably.
Like the HIV Aids virus, the disease leaves the body less able to fight off infections. It also disrupts the manufacture of red blood cells, leading to anaemia.
Leukaemia affects more than 7,000 people in the UK each year and causes 4,350 deaths.
Scientists are still unclear about what causes the cancer. The disease has been linked to smoking, exposure to radiation, and infection by a virus that attacks white blood cells. People with Down's syndrome also have a higher risk of developing leukaemia.
The new research implicates a gene called JAK2 that acts as a master switch, turning different genes on or off.
Previously JAK2 was only thought to function on the inner surface of cells. But investigators at the Wellcome Trust/Cancer Research UK Gurdon Institute at Cambridge University found that it also acts at the heart of the cell, in the nucleus.
There, an enzyme made by JAK2, controls the activity of other genes by altering proteins called histones that pack and protect DNA.
When JAK2 develops a fault its messages can become garbled, leading to chaos in the workings of the cell and triggering cancer.
Story sourced via the Press Assosciation Website.Click HERE to view.
Saturday, 3 October 2009
Forget Me Not Trot idea!......Anyone got a horse we can loan !
Hi people. Well it appears that the fundraising bug has now taken a hold of another member of the Ward Household, this time though the idea came from my daughter Lauren who is what you would class as "Horse Crazy"!.
She is planning something for 2010 (the 50th anniversary of the LRF), but because it is Lauren it does not involve Scirocco's (damn!), instead she wants to organise a meeting of people at a venue (yet to be decided) and for the participants to then take part in a "Forget Me Not Trot"!.
I think the title is fantastic, but as I have already warned her, these things take a lot of planning and organisation, something that, if it goes ahead, she will quickly learn :-).
So, if anyone has any suggestions as to what sort of format this should take, the area/site of the event, and how the sponsorship should be raised....please let us know!.
Oh, as she is currently "horseless", she could do with the loan of one if anyone happens to have a spare knocking....or should that be "trotting" around :-)
Take care.Andy
Just found another bit of info about Shirley on the Internet....
This was written by John Goldman in July of 2002 and relates to her (as then ) recent death.
" Shirley Nolan died in Adelaide, Australia on 14 July. It is customary in obituaries not to allude in too much detail to the manner of a person's death, but Shirley would have complained vocally about any such omission on grounds of politesse. She developed Parkinson's disease at a comparatively young age in the early 1980s and became increasingly incapacitated thereafter. Recently she felt that her life had become totally unbearable and she strongly advocated legalisation of voluntary euthanasia. In the event she planned her funeral and finally took her own life.
Shirley was born in England, but emigrated to Australia in the early 1970s. There in 1972 her first child, Anthony, was born with Wiscott-Aldrich syndrome characterised by a severe immune deficiency and thrombocytopenia, effectively untreatable at that time. When she learned that a child with a similar condition had been treated at the Westminster Hospital she instantly came to London with Anthony and sought the same treatment for him. HLA typing was then still in its infancy, but it soon became clear that neither parent was a suitable donor. Shirley focused then on what was logically the next question - was there an unrelated donor who could serve equally well? Most haematologists at the time were not immediately enamoured of the idea of HLA-typing large numbers of volunteers from the general public in the hope of finding just one suitable donor, but Shirley's enthusiasm and commitment were persuasive. The project was publicised by every available route and more than 300000 potential donors were tissue-typed in the next few years. Sadly no match was found and Anthony died in 1979 without ever having received a transplant.
Shirley's efforts continued unabated. The Anthony Nolan Laboratories were established in Anthony's memory at St Mary Abbot's Hospital in west London and for a while Shirley was personally responsible for raising the funds to continue tissue typing the potential donors, of whom there was no shortage. The whole operation was radically re-organised in the late 1980s with major financial support from the Round Tables of Great Britain and Northern Ireland and a new building was constructed to rehouse the increasingly overcrowded laboratory. Today the Anthony Nolan Trust operates a major tissue typing facility linked academically with the Royal Free Hospital in London and, of at least equal importance, supports a research institute dedicated to improving the results of allogeneic stem cell transplantation using unrelated donors. The Trust has more than 300000 donors on its books and annually facilitates transplants for 300 patients in the UK, elsewhere in Europe, North American and the rest of the world.
Internationally Shirley must be remembered as one of those rare visionaries who see more clearly than others the shape of things to come. They routinely face enormous opposition from those who favour maintaining the status quo, but their energy and clarity of vision eventually prevail. The register of volunteer donors that Shirley created served as a model for establishing the National Marrow Donor Program in the US and numerous similar registries in almost every developed country of the world. This remarkable international achievement is the true memorial for Anthony and for Shirley."
To go to the site which provided this information, please click HERE .
" Shirley Nolan died in Adelaide, Australia on 14 July. It is customary in obituaries not to allude in too much detail to the manner of a person's death, but Shirley would have complained vocally about any such omission on grounds of politesse. She developed Parkinson's disease at a comparatively young age in the early 1980s and became increasingly incapacitated thereafter. Recently she felt that her life had become totally unbearable and she strongly advocated legalisation of voluntary euthanasia. In the event she planned her funeral and finally took her own life.
Shirley was born in England, but emigrated to Australia in the early 1970s. There in 1972 her first child, Anthony, was born with Wiscott-Aldrich syndrome characterised by a severe immune deficiency and thrombocytopenia, effectively untreatable at that time. When she learned that a child with a similar condition had been treated at the Westminster Hospital she instantly came to London with Anthony and sought the same treatment for him. HLA typing was then still in its infancy, but it soon became clear that neither parent was a suitable donor. Shirley focused then on what was logically the next question - was there an unrelated donor who could serve equally well? Most haematologists at the time were not immediately enamoured of the idea of HLA-typing large numbers of volunteers from the general public in the hope of finding just one suitable donor, but Shirley's enthusiasm and commitment were persuasive. The project was publicised by every available route and more than 300000 potential donors were tissue-typed in the next few years. Sadly no match was found and Anthony died in 1979 without ever having received a transplant.
Shirley's efforts continued unabated. The Anthony Nolan Laboratories were established in Anthony's memory at St Mary Abbot's Hospital in west London and for a while Shirley was personally responsible for raising the funds to continue tissue typing the potential donors, of whom there was no shortage. The whole operation was radically re-organised in the late 1980s with major financial support from the Round Tables of Great Britain and Northern Ireland and a new building was constructed to rehouse the increasingly overcrowded laboratory. Today the Anthony Nolan Trust operates a major tissue typing facility linked academically with the Royal Free Hospital in London and, of at least equal importance, supports a research institute dedicated to improving the results of allogeneic stem cell transplantation using unrelated donors. The Trust has more than 300000 donors on its books and annually facilitates transplants for 300 patients in the UK, elsewhere in Europe, North American and the rest of the world.
Internationally Shirley must be remembered as one of those rare visionaries who see more clearly than others the shape of things to come. They routinely face enormous opposition from those who favour maintaining the status quo, but their energy and clarity of vision eventually prevail. The register of volunteer donors that Shirley created served as a model for establishing the National Marrow Donor Program in the US and numerous similar registries in almost every developed country of the world. This remarkable international achievement is the true memorial for Anthony and for Shirley."
To go to the site which provided this information, please click HERE .
Friday, 2 October 2009
The search now moves to Manston and Thanet in Kent......
I have just finished talking to a great fella named Martin who works "Daan Saaath" in Kent at the Kent Messenger Newspaper (actually he covers the Thanet region, so that is technically probably not correct!). Anyway, after quite a long conversation, or rather a long space of time in which i rabbited on and Martin listened (anyone who has tried to speak with me will tell you that i tend to speak "at" them!...it's my biggest failing...sorry!) I explained to him about my mission to find the current holder of the copyright for Shirley's book, but also asked if he could ask, through the newspaper, if any of the local people of the Thanet area hold any memories of the story about which my search revolves.
Martin offered to run a story in the paper sometime in the next few weeks, and he is happy to include my email address for the purpose of allowing folk to contact me with any info they may have.
I can't start to tell you how important this could be in assisting my search, and would like to just pass on to Martin and his newspaper my heartfelt thanks for offering to assist me in such a fantastic way :-).
Martin offered to run a story in the paper sometime in the next few weeks, and he is happy to include my email address for the purpose of allowing folk to contact me with any info they may have.
I can't start to tell you how important this could be in assisting my search, and would like to just pass on to Martin and his newspaper my heartfelt thanks for offering to assist me in such a fantastic way :-).
By the way, the picture at the top of the page in of the Jolly Farmer Public House which is refered to in the book when Shirley popped over to it during Anthony's second Chistmas at home....the one she feared would be his last. She bought a small bottle of sherry for heself and her mother to share on Christmas eve whilst watching over Anthony and pondering their uncertain future.
I have always said that i am a great believer in the ripples on a pond/chaos (butterfly flaps wings...etc) theory, and that i do so believe that by making these connections, these enquiries, I am certain that some day, maybe not too far away, questions will be answered, grey area's will be filled with light, and Shirley Nolan's name will once again be one that people will recognise.
It would be nice to know that by the time we reach the 21st October 2009, more people would be aware that on that day 30 years ago, a little boy named Anthony Nolan died, but it would also be good to just remind them that the legacy that his devoted mother Shirley established in an attempt to save her own precious child is still going strong today, and that the Anthony Nolan Trust is helping ordinary people to give the gift of life to thousands of other's who might otherwise die.
Thursday, 1 October 2009
Ramblings from early this morning :-).....well it was just after 2am!
Its 2.24 in the morning, and yet again i find myself inexplicably woken with my head full of thoughts and idea's pertaining to my search for the copyright owner of Shirley's book.So here i sit/lie with my laptop in bed adding another blog entry!.
As i have mentioned before, i am currently reading the story again, the second time i have done so, and yet again i feel compelled to carry on my search to identify this elusive goal to try to establish copyright ownership so that the book "A Kiss Through Glass" can be once more shared with the world.
What or who drives me on is any ones guess.Why, out of all of the people on this planet do i seem (on the face of it) to be the only individual who feels that it is morally wrong to consign this powerful,heartbreaking but ultimately inspiring story to the grey mists of time and the vault of obscurity and faded half remembered folklore. This is story to which possibly thousands, maybe in the greater picture, tens of thousands (including subsequent offspring),may owe their very lives too, and indeed the continued work of the Anthony Nolan Trust, which is still a thriving charity, pays testament to the labours of Shirley Nolan in her fight 30 years ago to save her beloved son Anthony.
The last few days have seen me sending off numerous emails to Australia as I try to widen the scope of my search, only yesterday I emailed the Adelaide Advertiser, a publication that ran several stories about the plight of Anthony during the early seventies. Even without receiving a reply I start to get that awful feeling that maybe too much water has passed under the metaphorical bridge of time for their to be anyone left at the publication who A) remembers the events of 1974-1979 and B) Would be interested in assisting my search. But maybe I am getting a little paranoid perhaps? Maybe tomorrow will bring something, anything tangible that could refresh my efforts, or perhaps, dare i dream, could even lead me to my ultimate goal.
It has just occurred to me that their is the slightest possibility that even when I (if I!) achieve my aim and find the copyright holder (that term is now starting to remind me of the "gatekeeper" in Ghost busters!), what happens if they decline my request to grant permission to republish the book? Why would they? What then? The truth is that I don't really know.I can't think why that situation would arise, but saying that, sometimes people or indeed organisations don't comply and do "the right thing".For whatever reasons are given, i must be ready (although it will be an awful blow) to be disappointed.
I have decided to start a group on Facebook called "Make A Kiss Through Glass into a film". The problem is of course that the vast majority of Facebook users are probably under 40, which means quite simply that due to the rarity of the book they are likely to be too young to have heard the story via the press as it was reported in 1974-1979...catch 22 as they say!, so I will have to refer members to my webpage and hope that my insane ramblings are enough to fire their imagination and gain their support.
Well, it's now 3.03 in the morning and the battery on the laptop is showing only 15 mins of life left (the laptop, not me!...hopefully!), so i will now end this post save it (if i don't get that right you won't be reading this anyway!), and then attempt to get 3 more hours of sleep before getting up, having a coffee and then returning for another fun filled day at the hospital :-). Bye for now.
As i have mentioned before, i am currently reading the story again, the second time i have done so, and yet again i feel compelled to carry on my search to identify this elusive goal to try to establish copyright ownership so that the book "A Kiss Through Glass" can be once more shared with the world.
What or who drives me on is any ones guess.Why, out of all of the people on this planet do i seem (on the face of it) to be the only individual who feels that it is morally wrong to consign this powerful,heartbreaking but ultimately inspiring story to the grey mists of time and the vault of obscurity and faded half remembered folklore. This is story to which possibly thousands, maybe in the greater picture, tens of thousands (including subsequent offspring),may owe their very lives too, and indeed the continued work of the Anthony Nolan Trust, which is still a thriving charity, pays testament to the labours of Shirley Nolan in her fight 30 years ago to save her beloved son Anthony.
The last few days have seen me sending off numerous emails to Australia as I try to widen the scope of my search, only yesterday I emailed the Adelaide Advertiser, a publication that ran several stories about the plight of Anthony during the early seventies. Even without receiving a reply I start to get that awful feeling that maybe too much water has passed under the metaphorical bridge of time for their to be anyone left at the publication who A) remembers the events of 1974-1979 and B) Would be interested in assisting my search. But maybe I am getting a little paranoid perhaps? Maybe tomorrow will bring something, anything tangible that could refresh my efforts, or perhaps, dare i dream, could even lead me to my ultimate goal.
It has just occurred to me that their is the slightest possibility that even when I (if I!) achieve my aim and find the copyright holder (that term is now starting to remind me of the "gatekeeper" in Ghost busters!), what happens if they decline my request to grant permission to republish the book? Why would they? What then? The truth is that I don't really know.I can't think why that situation would arise, but saying that, sometimes people or indeed organisations don't comply and do "the right thing".For whatever reasons are given, i must be ready (although it will be an awful blow) to be disappointed.
I have decided to start a group on Facebook called "Make A Kiss Through Glass into a film". The problem is of course that the vast majority of Facebook users are probably under 40, which means quite simply that due to the rarity of the book they are likely to be too young to have heard the story via the press as it was reported in 1974-1979...catch 22 as they say!, so I will have to refer members to my webpage and hope that my insane ramblings are enough to fire their imagination and gain their support.
Well, it's now 3.03 in the morning and the battery on the laptop is showing only 15 mins of life left (the laptop, not me!...hopefully!), so i will now end this post save it (if i don't get that right you won't be reading this anyway!), and then attempt to get 3 more hours of sleep before getting up, having a coffee and then returning for another fun filled day at the hospital :-). Bye for now.
Wednesday, 30 September 2009
Local lad Ryan Cano needs your support...can you help ?
Just read a notice about a concert that is being held at the Coopers pub in Mansfield Woodhouse on the 9th October to raise awareness of the plight of and help for a little lad named Ryan Cano who is fighting not only Leukaemia but also a condition called Haemophagocytic Lymphohistiocytosis’. He is a very brave and determined little guy and he and his family need your support in his ongoing battle.
If you are not too far way and fancy listening to a great local band on the 9th October, and also help this family please make a note in your diary :-)
To go to the Ryan's appeal page click HERE.
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The Copyright owner search......message from Australia has arrived :-)
I had a look at my emails this morning and found that my enquiry to the National Library of Australia has been responded too.
Yet again, frustratingly no ground breaking information, but quite a few suggestions of new avenues of enquiry.
This is the email that i received:
Dear Mr Ward
Thank you for contacting the National Library of Australia.According to information I found on the Internet, Shirley Nolan committed suicide in Adelaide (South Australia) in 2002. The only information I could find about her spouse stated that they had separated in 1975. The question of who is now the copyright holder for this book is unclear.The Australian Copyright Council's Information Sheet G51 Owners of copyright: how to find, states that,"If copyright was owned by an individual who has died, copyright is usually passed onto that person's spouse or children. You may be able to check who inherited copyright if you can get a copy of the person's will. If copyright has not been bequeathed specifically, it is presumed to form part of the residual estate. In Australia, contact the Probate Division of the Supreme Court in the State where the author died. Alternatively, if the work has been published, contact the relevant publisher."Contact details for the South Australian Supreme Court Probate Division can be found through this website: http://www.courts.sa.gov.au/courts/supreme/ and the email address given for Probate enquiries is: probate@courts.sa.gov.auThe publisher of "A Kiss Through Glass" was Gazelle Books, however I can't find any information to confirm that this publisher is still in business.Finally, the Copyright Agency Limited ( http://www.copyright.com.au/) is the major copyright collecting agency. It is possible that the author signed up with them.I hope this information is of assistance.
Good luck with your search.
Regards,Kate Boesen Reference Librarian
Information ServicesNational Library of Australia
Quite a lot to chase there, so it looks like this weekend will possibly be a busy on !
Many thanks to Kate for taking the time and effort to gather this information for me :-)
Off we go again!.............
.
Yet again, frustratingly no ground breaking information, but quite a few suggestions of new avenues of enquiry.
This is the email that i received:
Dear Mr Ward
Thank you for contacting the National Library of Australia.According to information I found on the Internet, Shirley Nolan committed suicide in Adelaide (South Australia) in 2002. The only information I could find about her spouse stated that they had separated in 1975. The question of who is now the copyright holder for this book is unclear.The Australian Copyright Council's Information Sheet G51 Owners of copyright: how to find, states that,"If copyright was owned by an individual who has died, copyright is usually passed onto that person's spouse or children. You may be able to check who inherited copyright if you can get a copy of the person's will. If copyright has not been bequeathed specifically, it is presumed to form part of the residual estate. In Australia, contact the Probate Division of the Supreme Court in the State where the author died. Alternatively, if the work has been published, contact the relevant publisher."Contact details for the South Australian Supreme Court Probate Division can be found through this website: http://www.courts.sa.gov.au/courts/supreme/ and the email address given for Probate enquiries is: probate@courts.sa.gov.auThe publisher of "A Kiss Through Glass" was Gazelle Books, however I can't find any information to confirm that this publisher is still in business.Finally, the Copyright Agency Limited ( http://www.copyright.com.au/) is the major copyright collecting agency. It is possible that the author signed up with them.I hope this information is of assistance.
Good luck with your search.
Regards,Kate Boesen Reference Librarian
Information ServicesNational Library of Australia
Quite a lot to chase there, so it looks like this weekend will possibly be a busy on !
Many thanks to Kate for taking the time and effort to gather this information for me :-)
Off we go again!.............
.
Monday, 28 September 2009
A phone call, an email...and a lucky break ?
I got my call from the British Library today as promised, although to be honest nothing definite was passed on sadly. Full credit to the lady who called me though, not only was she extremely helpful, but she is also registered with the Anthony Nolan Trust, so top marks for that!.
The email enquiry to the Australian Library is still pending, and i have my fingers crossed that this will prove to be a good lead, but then, whilst reading a letter that was published on line by Shirley Nolan and addressed to the South Australian Voluntary Euthanasia Society, i spotted something in the text that (incredibly as i had read it a few times before!) i had not noticed previously.....
The email enquiry to the Australian Library is still pending, and i have my fingers crossed that this will prove to be a good lead, but then, whilst reading a letter that was published on line by Shirley Nolan and addressed to the South Australian Voluntary Euthanasia Society, i spotted something in the text that (incredibly as i had read it a few times before!) i had not noticed previously.....
You probably can't see what it says due the way that the clip has been copied, but it actually says "I Shirley Nolan of the above address affirm that i have given some of my written books,pertaining to voluntary euthanasia,including my personal experience stricken with advanced Parkinson's disease, to the South Australian Voluntary Euthanasia Society. With my permission to use them in any way they wish to further the cause of voluntary euthanasia i.e the right to die with dignity and in peace".
Could this passing of the books copyright also include "A kiss through glass" ? I have emailed the society today, and i await their reply with some anticipation...and also some excitement ! :-)
To see the full contents of Shirley's letter, just click HERE
The search for the copyright owner goes on!.....
So today i decided to resume my search for the holder of the copyright of Shirley Nolan's book "A Kiss Through Glass".As you will be aware (if you have read some earlier posts) the search is proving to be so much harder than I first imagined it would be, and so far i have made quite a few enquiries but with little in the way of new or groundbreaking information.
The first call today was to the British library (may as well go for the jugular!), and this resulted in the promise of a return call with any information that may be found later today (Not sure of the ladies name to whom I spoke, but she seemed quite interested in the story of my search!).I will await a call with some anticipation.
Next, i emailed a question to the "Ask the librarian" section of the Australian National Library service. I received this confirmation of my request status....
"Question summary Question # NLAref30012
Request type Enquiry
Please state your enquiry
Hello.My names Andy Ward and i am currently trying to ascertain the owner of the copyright for a book published in 1978/79 called "A kiss through glass" by Shirley Nolan. The book told the story of her fight to save her son Anthony's life and the subsequent setting up of the Anthony Nolan Trust to recruit people onto the Bone Marrow Donors register. Can you help? Many thanks.Andy
Received date 28/09/09 06:44 pm
Status Unallocated (Pending)
Your email address +andywardsmail@tiscali.co.uk+"
So now we just have to wait and see what happens next :-)
I will keep you posted.
.
The first call today was to the British library (may as well go for the jugular!), and this resulted in the promise of a return call with any information that may be found later today (Not sure of the ladies name to whom I spoke, but she seemed quite interested in the story of my search!).I will await a call with some anticipation.
Next, i emailed a question to the "Ask the librarian" section of the Australian National Library service. I received this confirmation of my request status....
"Question summary Question # NLAref30012
Request type Enquiry
Please state your enquiry
Hello.My names Andy Ward and i am currently trying to ascertain the owner of the copyright for a book published in 1978/79 called "A kiss through glass" by Shirley Nolan. The book told the story of her fight to save her son Anthony's life and the subsequent setting up of the Anthony Nolan Trust to recruit people onto the Bone Marrow Donors register. Can you help? Many thanks.Andy
Received date 28/09/09 06:44 pm
Status Unallocated (Pending)
Your email address +andywardsmail@tiscali.co.uk+"
So now we just have to wait and see what happens next :-)
I will keep you posted.
.
Sunday, 27 September 2009
Alford Car show and a walk at Rufford Park....what's all that about then ?
It's quite easy to explain really as today myself,Mini me and Tom, my Father in law, went off to the Alford Car show this morning, whilst an hour or so later, my wife Teresa along with my daughters, set off to take park in a Leukaemia Research "Forget Me Not" walk at Rufford.
We set off for Alford at 07.50am and met up with Tom at his home on the way, then, after Mini me had decided to "jump Ship" and travel in Tom's 1972 1300 VW Beetle, we headed off in the general direction of Skegness/Mablethorpe and arrived at Alford at Approx 09.10. This was the first car show that had been held at Alford, and due in part to a rather fantastic sunny day it proved to be a very popular local event.
We parked up, set up and started to have a look around the estimated 90-100 cars on display.This was interrupted early on by a call from Teresa and the posse en route to Rufford, who had become rather lost and had found themselves heading for Doncaster!. After a riotous few mins trying to talk them back onto their planned course, they managed to get sorted and arrived at Rufford approx 10.15 where they bumped into my Mum and dad (and niece Emily...hi Em!) who had decided to come along to help them along on their 5k walk through the park.
Back at the car show we resumed our walk around, took some pictures of some of the great vehicles on show then we popped over to the George public house as we had been informed that their was an inflatable assault course to the rear of the premises.This we found, and after a little coaxing, Andy (mini me) managed to get me to have a go on it........after 3 laps of the inflatable from hell i decided that it was a great way of getting friction burns to the elbows, and so decided to retire from the fun and let Andy stay on for a few more minutes before returning to the town square.
After a rather nice lunch of Braised steak in Guinness with veg (very nice!) and a nice pot of tea, we went to the George again for a swift pint then at 2.45 we wandered over to the square for the results of the show, raffle draw and results of th colouring competition (Andy did not win this, so to save any more complaints from him on the subject nothing more will not be said!).
We did not win the raffle (shame!), we did however win a rather nice trophy (smug look on face...now!) to add to the one that we won earlier this month at Sleaford....result!.
After a drive back home (After having to jump start the car with Tom's Beetle because my 600w inverter had drained the battery after being left switched on for over 6 hours...ooops!) we met up with the girls and took a group photo to commemorate a very fine day for all of us...except mini me who didn't win the colouring competition....ooops...mentioned it again!.....sorry Andy Jr :-)
Oh yeah, we even managed to sell 6 LRF pin badges and combined with the sponsorship money the girls secured with their great effort at Rufford, we should be on target to be able to give the charity another £100....nice!
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